You’re a shining star, no matter who you are
Shining bright to see what you can truly be ~ Shining Star ~ Earth Wind and Fire
It’s hard to believe that it’s only been three years since I sat on the stairs listening to my little boy trash his bedroom in rage..
I remember staring at a big dent in the wall where he’d smashed the door back with such force that it knocked the plaster out. The fact that it was a rented house only added to the stress of the situation because ,at this rate, we would be kissing goodbye to our £450 bond.
My head felt sore from where he’d yanked my hair hair out and I had absolutely no idea why my child (who had been happy and smiling one minute) was now angrily launching his toys against the bedroom wall (I’d removed anything that could cause damage to him or the house, obvs) Was it something I’d done or said? Seemingly it came out of the blue..
Similar incidents had happened before but never to this degree. I’d experienced toddler tantrums with C but this was wasn’t in the same league and C’s tantrums were spectacularly bad.
I was unable to calm S down and it was impossible to reason with him. Bribery? That failed as well. Ma had died the year before so I could no longer lean on her for support while OH was at work. Never in my 24 years of being a mother had I felt so alone or such a failure. It was a difficult day, to say the least.
Only it wasn’t a tantrum.. it was a meltdown and S was diagnosed with ASD and Sensory Processing Disorder a year and half later. Finally it all made sense. I wasn’t a shit mother. My child was autistic!
I have documented S’ journey from diagnosis in this blog. We have had nothing but love and support from the onset from the professionals and the school. Knowing that a lot of parents struggle to get the right support for their autistic children, I count ourselves fortunate.
When S started school, he had major problems with the worst being social and communication. It became obvious that the 15 hours of support (as per his statement) weren’t enough. He had support in the morning but was out of control in the afternoon, especially at playtime’s or during other unstructured activities. I was getting regular phone calls to go and calm him down. The school requested more support, which they were granted, and then things improved in the afternoons as well.
The school have concentrated on his strength, which is maths. Last year, he wowed the school by being able to recite the entire twelve times table! Not many five year old’s can do that. I’m 44 and I STILL can’t do that but then, I’m thick, innit..
When he started school, he couldn’t take turns. He couldn’t share. He lashed out. He had meltdowns throughout the day and he wouldn’t write or attend assemblies..
Two years later he is a different child. He will take turns. He will share. He doesn’t lash out as much. His meltdowns have reduced. He still doesn’t do assemblies but the teachers understand that forcing him to do something which he can’t cope with is a recipe for disaster. One meltdown generally makes him unreceptive for hours, which means he doesn’t learn anything.
There has been an improvement in his writing as well…
Half-way through this year he was doing most of his work on the computer as he was refusing to write and most attempts to encourage him would end in meltdown. One day he decided he wanted to do it. He still holds the pencil cack-handed but the important thing is that, not only is he writing, but it’s voluntary!
I watched him write his dad’s name on his birthday card a few weeks ago. I watched in amazement as he curled the letters for the first time that I’d seen. Maybe most parents of six year old children won’t understand the importance of this but for parents like me, the smallest acts are usually the ones which stop us in our tracks..The word ‘Daddy’ written without help, prompting or melt-down changed a fairly mundane day into a momentous day.
S continues to use numbers as comfort. He is never without one in some form or other. His blackboard is a mass of sums, a stick picture of me (with my age above my head – 44 – Ahem!) and him holding my hand with his age above his head. I’m maths phobic. I HATE maths. Algebra? What the hell is that about? But the little Numberjack can’t get enough of the ‘M’ word!
Without the wonderful support he’s had, he wouldn’t be the boy we know today. He is proof of what early intervention can achieve when it comes to autism and special needs. He is different but he’s accepted and loved. He copes with his day because those around him understand his limits. He’s getting better at understanding them himself but still has bad days, like yesterday when he had a meltdown and lashed out at his special teacher. He hid under a blanket for a while because he didn’t like how it made him feel to lose control and when he came out, he did French. He NEVER does French because he doesn’t like how the words sound. Truth be told, neither did I. I wasn’t overly enthralled with French either but mostly because the teacher used to throw his briefcase across the room to get our attention, la psycho.
The class has a ‘Star of the Day’ award system which rewards good behaviour or work with being able to take in something of their choice to ‘show and tell’ the next day. S has many of these awards with the latest one awarded for doing French.
I think that all little children are stars. Their innocence shines light into a world that can sometimes be dark. Sadly, they morph into teenagers and the innocence is replaced with gobby one word answers like ‘So!’, ‘Because!’ and ‘Whatever!’ Not forgetting the standard phrase of the teenager on not getting their own way…
‘I HATE YOU, YOU’VE TOTALLY RUINED MY ENTIRE LIFE, I WISH I’D NEVER BEEN BORN!!!!’ *slam* *bang* *wollop*
I have no idea where S’ journey will take him or what form his teenage angst will take. I’m just enjoying who he is now because he is happy, therefore, I am happy and I am never more happy than when he flings his arms out to me and showers me in kisses in full view of all the other parents at school. He’s my star of the day, everyday.